This Lupus Life

I am the dancer and Lupus is my music. I want to make it look beautiful

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Boab at Town Beach

This site has been created for the discussion, information sharing and guidance of living with Systemic Lupus Erythematosus (SLE or Lupus), Rheumatoid Arthritis and Vasculitis. It has always been my intention to share the details of my experience as a way of giving hope and understanding to other young people who are going through, or know of someone going through, a similar circumstance in their own life. I include theories I have on nutrition, physical activity, emotional well-being, alternative therapies, not to mention the myriads of experiences I have during my bouts of good health in which I attempt to participate in the same ‘young woman’ activities as other people my age.

The intent behind these inclusions is to show how resilience and positive attitudes can empower us to achieve far beyond what we think we are capable of. They are also, I hope, suggestions of healthy and safe ways to look after a body that is at times difficult to get along with. I realise everyone’s journey is different and all I can hope is that by sharing my experience and knowledge, by allowing you to follow me through my good and bad times, by revealing a little bit of myself with each post you will gain some understanding or inspiration about yourself. Perhaps you will try something new, or be less inhibited in continuing down the path you are already on with a fresh or renewed outlook.

I can only hope.

With this blog I have opened up about myself. I have taken big steps down a clear path with genuine intentions. You are privy to my ideas on pain, healing and alternative therapies and lifestyles. You will be included in my journey through yoga, Pilates and water-based exercises. You will, hopefully, even be inspired to take some steps yourself to move forward or find a direction in your own journey.

Let’s put our ‘Grown Up Pants’ together!

Please kind friends, if you can contribute any thoughts or topics to write about, let me know! I am hoping to begin writing the first drafts of a book soon and I would absolutely love your guidance!!

 

ABOUT JESSIE:

I am in my mid twenties and fighting my battles to discover who I am and where I fit in to this zany, beautiful world. I was diagnosed with Lupus in in 2008. This takes up most of my focus, as I want to share the experience of trying to live with and rise above chronic invisible illness, so to speak.

I would like to stress very much the information regarding medications, medical procedures and illnesses are discussed from my point of view, and with my understanding, colloquialisms and metaphors. I do not attempt to be legally and precisely accurate for the general population, rather I try to be emotionally and descriptively true to my experiences.

I hope I can help in understanding others with chronic illness by providing one more personal recount of just how spontaneous and difficult these lives really are.

One day I hope to visit every continent, climb some pretty high mountains, sleep in an ice cavern, marry a wonderfully understanding man, have children and teach more children. Mostly, I just want a simple life, you know the house with a husband and kids. Oh, and no pain.

 

If you want to follow my media pages please do so!

http://www.twitter.com/ivaladybird

http://www.instagram.com/chevronspots

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2 thoughts on “Home

  1. Good luck with your book. Sounds exciting (I love reading and writing). 🙂

    Like

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    Liked by 1 person

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