This Lupus Life

I am the dancer and Lupus is my music. I want to make it look beautiful

Reading Challenge: October

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Wow, what a month to be trying to read fifty pages of some text or other every night. Given everything that has been going on this last month I was honestly just ready to fall into bed each night at 7pm. Somehow I managed to get back into my groove, thankfully, and I found some awesome new texts along the way.

I must stress it is important that I get this post in now, as it is the last clue I need to drop into place before I go ahead and do My Big Reveal.


2015  9Gag Reading Challenge – October

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A mystery or thriller  The Shining by Stephen King

A book published this year Moody Bitches by Dr Julie Holland

A memoir Mama Jude by Judy Steel

A book you own but have never read In the Kingdom of the Sick: A Social History of Chronic Illness in America By Laurie Edwards

A book that scares you Reboot with Joe by Joe Cross

The way I will reflect on these texts is by speaking about how they relate specifically to my current situation, and potential future direction. Well, except for The Shining. That was just a good read for kicks and giggles.

Judy Steel was a nurse in Adelaide who dedicated her retirement to improving the health care and lives of people in a small region of Africa. From her I took the inspiration of how and when you should dedicate your life to helping others in need. I have been volunteering in one capacity or another for the past three years now, and I also did this as a teenager at boarding school. I saw Judy as an inspiration, not because she volunteered, but because she had her life and kept her health and work in focus, and only when that was balanced and confirmed, did she go out and help others. I need to stop helping others for a bit and start to look after me. I need to balance my life and organise my health and lifestyle for a while.

In the Kingdom of the Sick discussed how chronic illness has eventuated and manages to keep its foothold in American society. Even though there are some similarities, there are also some differences. I do not know what this means, or how much impact this has and I have still to determine the direct and indirect implications on autoimmunes illnesses. I want to discuss it with you, but I am still trying to process and will reveal all as I get deeper into my reflections.

Moody Bitches explained how the medications I have been on long term are working in my body, in a very general way of course. This wonderful book reflects on the long term implications of hormone altering birth control methods (they are horrific and scary!) It does the same thing for antidepressants and some other big medications, which is wonderful. As well as these vital discussions, the book delves into the hormones behave in the female body at every stage from birth to death. Not to mention chemical and physical, and brain functions, during sex, orgasm, birth, menstruation and menopause. There is a whole chapter on inflammation and disease, diet and exercise. It is truly the most incredible book I can ever suggest. The best part is it is written by a psychiatrist who has had many years (decades) of experience in the field and she used this, as well as oodles of research and first hand references from her and her colleagues to help you understand and put these things in context. Yes it uses big words and hard concepts if you don’t have a medical degree, but these sections are short and actually not as hard to process (so long as you aren’t lying in bed getting ready to sleep)!

Reboot with Joe scares me. I know everyone else doing this challenge would have picked a thriller, but to be honest these don’t scare so much as intrigue me. Three years ago I watched the film Fat, Sick and Nearly Dead. About this time I went on a high vegetable and fruit diet, and also began a Raw diet. They both lasted the better part of six months and the only reason they did not continue was finances. It cost a lot to eat that much fresh groceries daily, and requires so much time for preparing and eating. You basically end up eating constantly just to get your two fruit and five veg and a handful each of nuts, seeds and other grains. I would mix in a small amount of dairy and three days a week I would have 150 grams of meat. I was very healthy and my body was in great condition, but I did not have an income and so had to break back down to eating within my income. It hurt me on a level I do not know how to describe. I rewatched this film again recently with Bow, my housemate, as he hadn’t seen it before. It has triggered in m e something deep, carnal, strong. I want to try again. So I bought the book and as I read through the recipes, and worked out the possibility of this commitment I became scared. I do not know if I can afford it. I do not know if I could stick to it. I do not know if it would be a good fix for me. But I was scared most of all because I actually wanted to try.

So now you know what I read this October

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Author: Chevron Spots

I am in my mid twenties and fighting my battles to discover who I am and where I fit in to this zany, beautiful world. I was diagnosed with Lupus in in 2008. This takes up most of my focus, as I want to share the experience of trying to live with and rise above chronic invisible illness, so to speak. I would like to stress very much the information regarding medications, medical procedures and illnesses are discussed from my point of view, and with my understanding, colloquialisms and metaphors. I do not attempt to be legally and precisely accurate for the general population, rather I try to be emotionally and descriptively true to my experiences. I hope I can help in understanding others with chronic illness by providing one more personal recount of just how spontaneous and difficult these lives really are. One day I hope to visit every continent, climb some pretty high mountains, sleep in an ice cavern, marry a wonderfully understanding man, have children and teach more children. Mostly, I just want a simple life, you know the house with a husband and kids. Oh, and no pain.

One thought on “Reading Challenge: October

  1. Pingback: 9Gag 2015 Reading Challenge: The Finale Count | This Lupus Life

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