This Lupus Life

I am the dancer and Lupus is my music. I want to make it look beautiful

The first of my new prescriptions: Quetiapine & Sodium Valproate


Since I have begun four new medicinal treatments in the last two months I do not want to go into too much detail. I also feel I have covered the context surrounding the prescription of these drugs more than I have needed to. For now I will skip all of that so we can get to the juicy stuff, and that is considering what new pharmacological concoctions are now throbbing through my system. Here are two of them.


Pharmacological name: Quetiapine (Generic drug suffix -tiapine indicates antipsychotic)

Brand name: Seroquel

Classification: Antipsychotic

Reason for prescription: This is to balance me whilst I am on the dose of prednisolone over the period with the lesion in my brain. The size of it, added to the stress of the situation I have been in over the last few months had lead me to a point which necessitated I stay on the steroids, and gain an extra stabilising mechanism. I say extra as I had previously been stable on the antidepressant Venlafaxine and early trials had indicated I did not function well on an increase in the strength of that medication.

I am on a ridiculously small dose, so small in fact it requires numerous chops of my pill cutter and the actual dosage is rarely likely to be consistent two nights in a row. I take a segment of a pill at night, and it sedates me for 8-9 hours, leaving me docile until late the next afternoon. The irony? I have not felt this clear headed since May.

Needless to say this is not a script I enjoy having in my repertoire and it weighs on my mind more like a burden than a blessing. As a responsible patient, however I know I am only ‘coping so well’ because of this drug and so I will not miss or meddle with it until the doctors advise me to, and then I will proceed as they direct.

Sodium Valproate

Pharmacological name: Sodium Valproate

Brand name: Epilim

Classification: Anticonvulsant

This is not actually a new drug for me, yet I have been reluctant to discuss it in the past. It has never been confirmed to be working, and with my feelings on it in general I held back. My feelings were more to do with the situation of uncertainty hanging over my ‘episodes’. This whole uncertainty was a ‘are they strokes, are they seizures‘ affair that is occurring to this day. The doctors are definite that I do not have epilepsy. This is confirmed as both ‘not epilepsy‘ from the cerebral lesions ergo vasculitis, and ‘not epilepsy’ from the cranial biopsy.

So what I am trying to say is that, during this whole saga, I have been on a prescription for Sodium Valproate. When I had my episode on October 16th during my second Rituximab infusion there was certainly undoubted proof that something I was taking wasn’t working as it should be. The blessing of this episode was that there were many medical staff to monitor and observe me during the whole thing. I was in the best position to have an assessment and for decisions to be made. The decision was that my dose wasn’t strong enough. Really it is a small dose, all things considered. Apparently. So the dose was increased, both in the mornings and evenings. It will be reviewed when things settle down.

I will introduce you to another drug tomorrow and discuss what the bleeding heck I am going to do about the pharmacy that is now my bathroom cabinet. (!)

Further readings on Quetiapine are are:

National Library of Medicine

Author: Chevron Spots

I am in my mid twenties and fighting my battles to discover who I am and where I fit in to this zany, beautiful world. I was diagnosed with Lupus in in 2008. This takes up most of my focus, as I want to share the experience of trying to live with and rise above chronic invisible illness, so to speak. I would like to stress very much the information regarding medications, medical procedures and illnesses are discussed from my point of view, and with my understanding, colloquialisms and metaphors. I do not attempt to be legally and precisely accurate for the general population, rather I try to be emotionally and descriptively true to my experiences. I hope I can help in understanding others with chronic illness by providing one more personal recount of just how spontaneous and difficult these lives really are. One day I hope to visit every continent, climb some pretty high mountains, sleep in an ice cavern, marry a wonderfully understanding man, have children and teach more children. Mostly, I just want a simple life, you know the house with a husband and kids. Oh, and no pain.

2 thoughts on “The first of my new prescriptions: Quetiapine & Sodium Valproate

  1. I’ve been on Seroquel for a little over a year. While it really helps with the insomnia, I find that it tends to have a negative effect on my mood. At a low dose, though, it doesn’t bother me too much.

    I hope it helps you. Best of luck!


  2. Pingback: My other new prescription: Mycophenolate | This Lupus Life

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