This Lupus Life

I am the dancer and Lupus is my music. I want to make it look beautiful

Tuesday and Wednesday as a Volunteer Ambassador

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Tuesday I came out of hiding (holidays) to fulfill my duties as a Murdoch University Volunteer Ambassador. The event was a gathering at the Kwinana Youth Zone to speak about the variety of ways youth can get involved in volunteering. The age group was teenagers from 12 years to 17 years. A small collective of us Murdoch Ambassadors met at The Hub (Murdoch University’s volunteer center). We brainstormed some ideas and built our own ‘lesson plan’ strategy on how and what we were going to do.

As well as this we also caught up on our lives, since we have developed quite a nice relationship through our roles. A few hours of chatting and project management later our roles and individual ‘speeches’ have been agreed on, as well as some fun activities and prizes.

Wednesday, I met with ‘Our Fearless Leader’ Nico and we drove down to meet the rest of the ambassador crew at the Darius Wells Library and Recreation Centre. By the time everyone else had shown up my shoulders had relaxed and I wasn’t feeling completely glum about the whole situation. The setting up at The Youth Zone next door took little to no time, other than technical difficulties. Half an hour later the somewhat enthusiastic young fellows began to show up. They were typical teenagers, interested in friendships, loved playing computer games and wanting to be meaningfully engaged in a new topic that was just the right level of challenging.

We identified quickly how best to communicate, what language and stories about volunteering they would respond to most and how to ‘reel them in’ as potential youth volunteers. And we nailed it! After our conversations, activities and workshop we were pulled aside for some very positive enquiries into how they can get started, what kind of organisations would take on ‘minors’ and what benefits and employment opportunities they can gain from unpaid work.

What more could you ask for?

A quiet night with your mother, that’s what!


Author: Chevron Spots

I am in my mid twenties and fighting my battles to discover who I am and where I fit in to this zany, beautiful world. I was diagnosed with Lupus in in 2008. This takes up most of my focus, as I want to share the experience of trying to live with and rise above chronic invisible illness, so to speak. I would like to stress very much the information regarding medications, medical procedures and illnesses are discussed from my point of view, and with my understanding, colloquialisms and metaphors. I do not attempt to be legally and precisely accurate for the general population, rather I try to be emotionally and descriptively true to my experiences. I hope I can help in understanding others with chronic illness by providing one more personal recount of just how spontaneous and difficult these lives really are. One day I hope to visit every continent, climb some pretty high mountains, sleep in an ice cavern, marry a wonderfully understanding man, have children and teach more children. Mostly, I just want a simple life, you know the house with a husband and kids. Oh, and no pain.

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