This Lupus Life

I am the dancer and Lupus is my music. I want to make it look beautiful

My Big Girl Pants

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My Big Decision for the year was to put on my Big Girl Pants. I had upped the ante as far as my blog entries go, and I had started to do some serious research into chronic illnesses, mental health and treatment options. I have always talked in a semi-joking way about wanting to be a teacher and a published author. I suppose like many people I used humour to share my deepest dreams and hopes without feeling vulnerable.

Last year I opened up regardless of my fears of feeling vulnerable to share with people honestly my struggles with my health. This journey helped give me the strength to realise my goal of writing another book. I say another because when I was a teenager I actually wrote three novels that are still in the draft stages with a local publisher. I cannot say if they will ever be published but from that experience I learned I could write. Last year after my second semester exams were over I began writing my new book. This one feels more ‘right’ to me. My thoughts were to create something based on my experiences with my health, particularly my journey through discovering how to cope and take control of the uncontrollable. Sort of ‘How-to-be-sick’ guide.

It is written.

 

I do need to edit it and amalgamate all the pages together into one book now. Then I will put it through my editors (what an exciting sentence!) I have a feeling I will need to write a bit more to bulk it out though which begs the question:

If you could have had some advice when/if you receive a diagnosis for a chronic illness, what would you find most valuable?

In preparation for my book I began taking steps to ready my ‘profile’ for the release. I learned about this ‘hashtag’ phenomenon #wince 😉 I have designed my profile cards. I am currently working with a designer on an updated website and a Facebook Page for ThisLupusLife.

My business cards have arrived!!! Hoorah! Pretty much most exciting step in my 'Master Plan' for #ThisLupusLife

A post shared by Jessie Frost (@thislupuslife) on

I feel as though I am growing up, strangely. The bigger the steps I take towards my goals and the more I think about the whole process, the more excited I get and the more focused my mind becomes on dedicating time regularly to writing both here and for my book.

My book. Te he he.

If this is what it feels like to wear Big Girl Panties then I want to fill my life with them!

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Author: Chevron Spots

I am in my mid twenties and fighting my battles to discover who I am and where I fit in to this zany, beautiful world. I was diagnosed with Lupus in in 2008. This takes up most of my focus, as I want to share the experience of trying to live with and rise above chronic invisible illness, so to speak. I would like to stress very much the information regarding medications, medical procedures and illnesses are discussed from my point of view, and with my understanding, colloquialisms and metaphors. I do not attempt to be legally and precisely accurate for the general population, rather I try to be emotionally and descriptively true to my experiences. I hope I can help in understanding others with chronic illness by providing one more personal recount of just how spontaneous and difficult these lives really are. One day I hope to visit every continent, climb some pretty high mountains, sleep in an ice cavern, marry a wonderfully understanding man, have children and teach more children. Mostly, I just want a simple life, you know the house with a husband and kids. Oh, and no pain.

One thought on “My Big Girl Pants

  1. Pingback: Awards and Progress | This Lupus Life

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