This Lupus Life

I am the dancer and Lupus is my music. I want to make it look beautiful

2014 vs 2015

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Every year about this time I usually post a reflection on the year that was and the year that will be. I have already written reflections on my ‘Resolutions‘ and my ‘Goals‘ (in a manner of speaking). Yet writing about the year as a whole has been a bit difficult for me to come to. Part of this is due to how much I have been more reasoning of events as they happen and part of this is simply because I find I am in constant reflection of the past few years as they have had a direct impact on where I am at this stage of my life and health.

Each year my mother and I quietly say to each other in our quietly assured way “This is going to be a good year. Better than the last few.” I’ll bet you can understand why. This has been our mantra since I was seventeen and had experienced my first few health hiccups.

However, last year it truly felt different. So many people were marrying, having children, buying or building and just generally taking incredible, life-changing steps in their own lives. I was over the moon with opportunities I had to share in these joys and help in the celebrating of creating these memories.

Yes it is true, for me life wasn’t travelling too smoothly. I was unperturbed as I have become accustomed to my unwanted guest Lupus (SLE). What others may find as a significant delay in their journey down lifes road was just another minor detour. Please don’t think I don’t understand the gravity of my health this year. Recovering from the Cerebral Vasculitis involved many trials with a variety of medicines; Topiramate, Propanolol, Prednisolone, Azathioprine and Epilim. Yes, having a seizure and losing my faculties in front of the audience during a school performance of a musical I was in kept me grounded in the realisation of my health situation, don’t you worry!

look good

Regardless of everything the SLE threw at me in 2014 I didn’t feel as troubled as I have in the past years. Sure I won’t lie and say it was all smooth sailing. But I wouldn’t change anything either. I have made great memories, felt deep emotions and learned incredible lessons. Polly and a select few people were there with me through every step of it, for which I am ever so humbled. I certainly hope I don’t have any more seizures, masses, kidney stones or anaphylactic reactions in the future, but if I do all I have to say is ‘Come at me bro!’.

I haven’t made a prediction for the year ahead. I don’t really want to. I know it will be good because I will make it good. If there is anything else SLE, or anyone else, thinks they are going to hit me with in the future I say ‘Good Day’ to them.

I say ‘Good Day’.


Author: Chevron Spots

I am in my mid twenties and fighting my battles to discover who I am and where I fit in to this zany, beautiful world. I was diagnosed with Lupus in in 2008. This takes up most of my focus, as I want to share the experience of trying to live with and rise above chronic invisible illness, so to speak. I would like to stress very much the information regarding medications, medical procedures and illnesses are discussed from my point of view, and with my understanding, colloquialisms and metaphors. I do not attempt to be legally and precisely accurate for the general population, rather I try to be emotionally and descriptively true to my experiences. I hope I can help in understanding others with chronic illness by providing one more personal recount of just how spontaneous and difficult these lives really are. One day I hope to visit every continent, climb some pretty high mountains, sleep in an ice cavern, marry a wonderfully understanding man, have children and teach more children. Mostly, I just want a simple life, you know the house with a husband and kids. Oh, and no pain.

One thought on “2014 vs 2015

  1. Pingback: 2015: Yearly revision | This Lupus Life

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