This Lupus Life

I am the dancer and Lupus is my music. I want to make it look beautiful

100 Followers: My Thank You

1 Comment

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I am very pleased to confirm I now have reached 100 followers! This is greatly exciting news to my ‘text-ears’ (or more precisely my eyes). My blog did begin over 5 years ago but I only found my footing at the end of last year and only decided to make a proper effort early this year. Even then I have only begun to truly appreciate and understand the importance and usefulness of blogging in the last two months.

Through this site my life goals have become clearer, indeed they have actually developed in direct response to this. My value of myself, my writing abilities and the voices of other people in the world has sharpened and deepened profoundly. My understanding of the vastness and impact of Lupus, SLE or otherwise, mental health and chronic illness in general has been clarified and enabled me to appreciate just how lucky I am, and also acknowledge that my story is worth sharing, regardless of what the personal cost to me might be.

My journey is unique but in many ways it is so profoundly similar to so many other young people and I have always felt that I should use my experiences in some positive way to help other young people trying to cope with, comprehend or demystify what it means to be anything but what the media and society promote as the ‘standard young person’.

It is hard.

Life is hard.

There is no manual or textbook that tells you how to repair your ailments.

The wiring in your brain cannot be replaced or manipulated, or if it can it takes time and effort and needs delicacy so irreparable damage is not caused.

When you are a young person and your body fails there is little access or public support to make things easier or less embarrassing. Many of the groups involve older people, who want to talk about adult issues which seem too heavy and onerous for the youth.

We don’t want to be in a heated pool with grandparents doing aqua aerobics, nor do we want to have coffee and listen to people discuss their divorces, childrens’ school troubles or mortgage repayment concerns whilst on pensions.

We want to talk about not being able to wear heels and dance at disco’s, how embarrassing it is to wear an ugly hat (they are all ugly when they have to be wide brimmed at that age), how you can’t go to parties or late night shopping because you get exhausted so easily and how your friends are tired of you always bailing on events because of your illness.

So I blog. Now I know more and have ‘found my voice’ I think I’m doing a better job. I thank every one that has been following me so far and I hope I find a lot more of you in the future to follow me.

I want to make a wonderful note of the following:

HIVegan was one of the two that came in as my 100th follower (yes it was a tie!) This fabulous fellow is a Vegan with HIV. Profound few words and there is definitely more but please find out for yourself. I’m loving the reading so far!

PatrickMitsuing is the other 100th follower. His writing has this nice positive edge and he works in online marketing and advice.

My Experience with Lupus is written by Michelle and it is so strange but I feel so close to this lady. She lives…on an island in…USA (I’m guessing). As you can probably guess we have some things in common but enough to keep me coming back. As a Lupus blogger Michelle has inspired me most to keep going.

So I Have MS, Now What? is written by Caroline, also of USA with Multiple Sclerosis. I love her garden and her positive attitude as she tackles her illness and manages that plus four grown men and pet(s?) besides!

Mrs S. Coombes of NSW. She is not a blogger but we connected last year after she experienced a profound personal loss. Her strength and attitude have deeply affected me and have taught me the meaning of resilience and strength. I really look up to her now, although I haven’t seen her since her loss. Her photographs are really becoming something quite spectacular to see too.

These are all worth a mention so while I take a nap to thank my lucky stars for good health (actually I have a migraine at present hehe) Please have a look into these brilliant people.

Big hugs and much love. Here’s to the next 100! x

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Author: Chevron Spots

I am in my mid twenties and fighting my battles to discover who I am and where I fit in to this zany, beautiful world. I was diagnosed with Lupus in in 2008. This takes up most of my focus, as I want to share the experience of trying to live with and rise above chronic invisible illness, so to speak. I would like to stress very much the information regarding medications, medical procedures and illnesses are discussed from my point of view, and with my understanding, colloquialisms and metaphors. I do not attempt to be legally and precisely accurate for the general population, rather I try to be emotionally and descriptively true to my experiences. I hope I can help in understanding others with chronic illness by providing one more personal recount of just how spontaneous and difficult these lives really are. One day I hope to visit every continent, climb some pretty high mountains, sleep in an ice cavern, marry a wonderfully understanding man, have children and teach more children. Mostly, I just want a simple life, you know the house with a husband and kids. Oh, and no pain.

One thought on “100 Followers: My Thank You

  1. Thank you for the kinds words! I’m looking forward to reading more of your posts and I hope you enjoy mine! šŸ™‚


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