This Lupus Life

I am the dancer and Lupus is my music. I want to make it look beautiful

Broome: Surprise!


I have been a little bit naughty and not mentioned much in the lead up to this trip. To be honest, I was under the idea that my body would sabotage me once more and I would have to forego this small holiday trip. It happened like this…

I grew up in a very small town in the south-west of Western Australia where the shire population is around 1 or 2 thousand and the town itself is maybe 500-ish. In the town school, a district high school which only teaches to year 10 (14 year olds), the average class size when I was attending was about 20 children. So that is 20 children in the shire that are the same age as me. We had no choice, due to the isolation, lack of resources, social outlets and limited variety of options, but to get along with each other. The friendships established crossed interests, talents, and personal ideals and opinions and hence were made of deeper, stronger bonds than any made in most other circumstances. These children I have known like no other person from the age of infancy. We cannot help but love each other and respect each other now.

There was one girl who had a heart stronger and deeper than any I have ever known. Life circumstances and all that. The happiest person, more content within herself and more willing to help and share without question. She now lives in Broome. In fact seems a decent amount of the girls from my town, or the regional boarding school where we both went to upper high school together, now live in Broome.

This girl, Sho, gave birth to her second child earlier this year. I gushed over the pictures of the bubbly boy one day online and she dropped more wonderful news….

Sho was getting married.

In October.

In Broome.

Would I like to come?

I can bring a plus one (I was still in iffy health at that stage).

I was so humbled that I had been considered, I know how hard weddings can be. I would be nearing my exams and the end of my semester by then so iI would need to schedule study and assignments around it. Not to mention the financial implications and I had no one to go with. I couldn’t go alone, and I couldn’t be in a new place without someone to help me if I get in trouble, especially if it is hot and humid and windy. I mentioned it to my folks in passing on the phone next time and ma went crazy! My mother was friends with hers, both still live in our familial homes in the country. My mother actually had a lot to do with Sho’s older sister over the years.

The folks were thrilled to hear about a holiday for me. ‘A well needed break and chance to recover‘. I was reminded that from one of my past lives I had accrued frequent flyer points with an airline and could likely get return flights at no cost. The family could pay for my accomodation for a birthday gift. I insisted I could get bakery and supermarket meals to save on travel expenses and there were plenty of free tours.

No worries!

Then my elder brother decided to go to Jakarta for a week.

Then my younger brother decided to go to Bali for a week.

Then my father’s work decided to send him to the United States for a few weeks.

My mother wasn’t having any of this! She was going away too! Since I needed help and she was so good at caring for me it was settled.

Ma was going to Broome too!

I got her on my flights, she confirmed with my hotel that my room would have two beds. I confirmed with Sho that it was okay if Ma was my plus one and Sho sent down pamphlets and brochures on everything that may interest us to do. I listed who I wanted to see and what I wanted to do, but decided, since my body was known to do its’ own thing and since I had a bad habit of double booking or forgetting plans I had made, I wasn’t going to mention it to anyone until shortly before I flew. If I was sickly then I could just hide by the pool and beach for the week.

Broome baby!!


Author: Chevron Spots

I am in my mid twenties and fighting my battles to discover who I am and where I fit in to this zany, beautiful world. I was diagnosed with Lupus in in 2008. This takes up most of my focus, as I want to share the experience of trying to live with and rise above chronic invisible illness, so to speak. I would like to stress very much the information regarding medications, medical procedures and illnesses are discussed from my point of view, and with my understanding, colloquialisms and metaphors. I do not attempt to be legally and precisely accurate for the general population, rather I try to be emotionally and descriptively true to my experiences. I hope I can help in understanding others with chronic illness by providing one more personal recount of just how spontaneous and difficult these lives really are. One day I hope to visit every continent, climb some pretty high mountains, sleep in an ice cavern, marry a wonderfully understanding man, have children and teach more children. Mostly, I just want a simple life, you know the house with a husband and kids. Oh, and no pain.

5 thoughts on “Broome: Surprise!

  1. Pingback: Broome: Day 2: Familiarising | Nitya Nata

  2. Pingback: Broome 3: The Hen’s Party | Nitya Nata

  3. Pingback: Broome Day 5: The Wedding | Nitya Nata

  4. Pingback: Broome Day 5: The Wedding | This Lupus Life

  5. Pingback: Neon Run – Light Up The Night | This Lupus Life

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