This Lupus Life

I am the dancer and Lupus is my music. I want to make it look beautiful

It’s happened again


I write this from my phone in my hospital bed. I had another one of my neurological episodes yesterday. There were a few small differences, the biggest one for me was that it happened on stage during one of the performances of the musical I have been building up to this semester. I carried on, like the girl I am, and didn’t drop my line. I did however fall down the stairs and sprain my ankle.
The fall occurred as I lost control of the left side of my body. This loss of movement lasted only for a few minutes and I have since regained full function.
The disorientation that comes with these stroke-like episodes stuck around for a good 4 hours but I was fortunate to be able to make it to Fremantle Hospital with the help of my tutor within half an hour of the incident.

This morning I have been up with the doctors since 4am going through my obs and giving my samples for tests. I have just returned from an MRI to see if the masses have returned to my brain and am now waiting for my folks to arrive from home and Wally to come with ideas for progress.

I will be keeping you updated, do not worry. Here is my lovely ankle.




Author: Chevron Spots

I am in my mid twenties and fighting my battles to discover who I am and where I fit in to this zany, beautiful world. I was diagnosed with Lupus in in 2008. This takes up most of my focus, as I want to share the experience of trying to live with and rise above chronic invisible illness, so to speak. I would like to stress very much the information regarding medications, medical procedures and illnesses are discussed from my point of view, and with my understanding, colloquialisms and metaphors. I do not attempt to be legally and precisely accurate for the general population, rather I try to be emotionally and descriptively true to my experiences. I hope I can help in understanding others with chronic illness by providing one more personal recount of just how spontaneous and difficult these lives really are. One day I hope to visit every continent, climb some pretty high mountains, sleep in an ice cavern, marry a wonderfully understanding man, have children and teach more children. Mostly, I just want a simple life, you know the house with a husband and kids. Oh, and no pain.

14 thoughts on “It’s happened again

  1. Glad you are safe and sound and having a complete and thorough workup! Building a case and arriving at a good, educated conclusions! Thank you for the update and be well friend! ๐Ÿ™‚


  2. Hope you are feeling better soon, blessings ๐Ÿ™‚


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