This Lupus Life

I am the dancer and Lupus is my music. I want to make it look beautiful

Noony & Fibromyalgia

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I am so excited to share my new friend with you. We have come together by need to an extent but I think it’s just good fortune that we have got along well as it might’ve made things hard otherwise. See she’s not just any normal friend.

Late last year my mother came to me with a favour to ask. A friend of hers was worried about their future daughter-in-law. The girl was about the same age as me and was going to a Rheumatologist for possible Rehumatoid Arthritis.

The mother-in-law was unsure what to do and asked my mum for advice, who in turn came to me. What advice do I have for someone else in a similar situation? What a loaded question! How does one answer that? There is no answer, because how can anyone be sure of how they will deal with their body and their illness. My answer was to get the girl’s number and meet her myself. I can answer her questions and talk her through any different possible options and suggest tings she may want to try herself.

Noony and I met early in 2012 for hot drinks and a chat. I am happy to say I think we hit it off grandly from the beginning. By the time of our first chat Noony had been diagnosed by her doctor. She has Fibromyalgia.

Fibromyalgia (Fibro) is not openly recognised as an illness in many countries in the world. There is no clear diagnosis for it and often no clearly defined treatment plan for it. The symptoms are more akin to a having few beans from a bean bag, than a few steps in a stairwell as there is no obvious progression. She said she wishes she had Lupus.

Fibro is a Rhuematic illness which I was not familiar with at all before meeting Noony. But as its still Rheumatic, and we had a lot in common, we are working through different “programs” I have found are successful to see what helps her feel good. In the future the targets are diet, physical activity, health assistance and pain management. The ultimate goal is to reduce the pain to occasional and manageable, and to help so that Noony can ride her horse regularly without worry of the repercussions.

My fingers are crossed!


Author: Chevron Spots

I am in my mid twenties and fighting my battles to discover who I am and where I fit in to this zany, beautiful world. I was diagnosed with Lupus in in 2008. This takes up most of my focus, as I want to share the experience of trying to live with and rise above chronic invisible illness, so to speak. I would like to stress very much the information regarding medications, medical procedures and illnesses are discussed from my point of view, and with my understanding, colloquialisms and metaphors. I do not attempt to be legally and precisely accurate for the general population, rather I try to be emotionally and descriptively true to my experiences. I hope I can help in understanding others with chronic illness by providing one more personal recount of just how spontaneous and difficult these lives really are. One day I hope to visit every continent, climb some pretty high mountains, sleep in an ice cavern, marry a wonderfully understanding man, have children and teach more children. Mostly, I just want a simple life, you know the house with a husband and kids. Oh, and no pain.

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