This Lupus Life

I am the dancer and Lupus is my music. I want to make it look beautiful

Project 365: 04

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 Every afternoon she comes inside, has a drink and sits by the door to wait.

She waits in the evening. For the sun to set. When the sun sets it is dinner time. When the sun sets the day goes away and the cool breeze comes.

She waits by the door. For a chance to sneak out. There is no night-time roaming allowed. Night-time roaming means hunting, fights, other naughty things besides.

She waits for bedtime. For the time before I sleep. She does not sleep herself, just nap. Bedtime is the time for the big cuddle and her favourite rug. She always gets the most attention at bedtime.

Every night, after her drink, she comes inside to wait.


Author: Chevron Spots

I am in my mid twenties and fighting my battles to discover who I am and where I fit in to this zany, beautiful world. I was diagnosed with Lupus in in 2008. This takes up most of my focus, as I want to share the experience of trying to live with and rise above chronic invisible illness, so to speak. I would like to stress very much the information regarding medications, medical procedures and illnesses are discussed from my point of view, and with my understanding, colloquialisms and metaphors. I do not attempt to be legally and precisely accurate for the general population, rather I try to be emotionally and descriptively true to my experiences. I hope I can help in understanding others with chronic illness by providing one more personal recount of just how spontaneous and difficult these lives really are. One day I hope to visit every continent, climb some pretty high mountains, sleep in an ice cavern, marry a wonderfully understanding man, have children and teach more children. Mostly, I just want a simple life, you know the house with a husband and kids. Oh, and no pain.

One thought on “Project 365: 04

  1. Pingback: My 2015 Book Challenge | This Lupus Life

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