This Lupus Life

I am the dancer and Lupus is my music. I want to make it look beautiful

Day Ten-Last Full Day in London

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I will not be writing much tonight. Here is the day in dot point:

  • Shrimp and I moved from Shakespeares Paddington to Royal National Russell Square St Pancras
  • There is no Platform 9 3/4 at Kings Cross
  • We fought most of today. He says I woke up cranky. I didn’t but I do look angry when I’m concentrating and I was worried about the size of my bag so that must be it. He was also not being exactly kind to me with his accusations of how I cross roads and read maps and talk and react to his comments…well you get the idea. Neither of us was to blame and neither of us is to blame and neither of us is innocent. I apologised which seemed to fix things.
  • I have been plagued with a sore back and legs and am having trouble sleeping. There is also a lump in my neck which hurts like anything. This and a few other things will have me visiting a doc on my return.
  • We had lunch with Aimee and Matt and will be meeting them for dinner.
  • Early to bed and leaving at 6:45am on the ‘morro.
  • I feel like crying



Author: Chevron Spots

I am in my mid twenties and fighting my battles to discover who I am and where I fit in to this zany, beautiful world. I was diagnosed with Lupus in in 2008. This takes up most of my focus, as I want to share the experience of trying to live with and rise above chronic invisible illness, so to speak. I would like to stress very much the information regarding medications, medical procedures and illnesses are discussed from my point of view, and with my understanding, colloquialisms and metaphors. I do not attempt to be legally and precisely accurate for the general population, rather I try to be emotionally and descriptively true to my experiences. I hope I can help in understanding others with chronic illness by providing one more personal recount of just how spontaneous and difficult these lives really are. One day I hope to visit every continent, climb some pretty high mountains, sleep in an ice cavern, marry a wonderfully understanding man, have children and teach more children. Mostly, I just want a simple life, you know the house with a husband and kids. Oh, and no pain.

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