This Lupus Life

I am the dancer and Lupus is my music. I want to make it look beautiful

Day Three-Aimee!!

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Early to bed = early to rise. Woke up at 5:30 and watched TV in bed until an appropriate hour. Early brekkie as Aimee had requested our company at Victoria Station at 9am. Her 9am at Victoria Station is different to ours, so after the biggest coffee of my life we ran around Victoria Square for 35 min trying to find each other.

Introductions to Aimee’s brother Matt and Chav’s (??) cousin Harriet were made over a proper English breakfast of ale and croissants. By the time we head to the Big Bus Tour I am buzzing like an electric eel. The tour takes us everywhere we saw the day before. Harriet provided great entertainment as she performed the ‘Sullen Teenager’ and pretended to be embarrassed by us. Secretly I could tell she was having fun though!

Madame Tussade’s was long and everything you can imagine. The place was packied out. I got to touch Robert Pattinson *sigh* and had breakfast with Audrey. The thought of the scary tunnel sent my legs a quiver so we left that up to the guys and met them at the end.

Beer, banger and mash a fish and chips before more Hamley’s. I officially became, at this point, the SUper Best Wicked AWesome Friend For EveR a.k.a SUBWAWFFER (propounced sub-whoo-ffer). I would have preferred this to be a surprise so exactly why will kind of have to wait…

By evening we were ready to sleep on the bus so we got off and went shopping in Selfriges. If you know me well you will understand how I feel about shoes. I was overwhelmed. Drunk with choice. Sickened at the range. Thank God I collect scarves these days!! We lost Shrimp in this magnanimous department store. Luckily we bumped in to him at the entrance eventually.

At this point we decided to end our day. Having been out touring for 12 hours it was time for the crew to make their way back to Rochester and ours back to Paddington. Now it’s time for shower and bed.

Maybe we will check out the Zoo and Aquarium tomorrow. Ciao xx


Author: Chevron Spots

I am in my mid twenties and fighting my battles to discover who I am and where I fit in to this zany, beautiful world. I was diagnosed with Lupus in in 2008. This takes up most of my focus, as I want to share the experience of trying to live with and rise above chronic invisible illness, so to speak. I would like to stress very much the information regarding medications, medical procedures and illnesses are discussed from my point of view, and with my understanding, colloquialisms and metaphors. I do not attempt to be legally and precisely accurate for the general population, rather I try to be emotionally and descriptively true to my experiences. I hope I can help in understanding others with chronic illness by providing one more personal recount of just how spontaneous and difficult these lives really are. One day I hope to visit every continent, climb some pretty high mountains, sleep in an ice cavern, marry a wonderfully understanding man, have children and teach more children. Mostly, I just want a simple life, you know the house with a husband and kids. Oh, and no pain.

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