This Lupus Life

I am the dancer and Lupus is my music. I want to make it look beautiful

Day One

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We flew out on time at 1:30. Shrimp with a strong dislike of flying was certainly on the worried side but my boy hid it well. An early mention of turbulence did hold him back from sleep for a good half hour though…We both slept for half the trip to Kuala Lumpur. But I got bored so then he got to wake up and listen to my stories. Lucky him!

Breakfast at KL International Airport wasn’t a wonderful affair. I was reeling from a sunburnt from hours of  gardening the afternoon before and so felt too hot and sick to eat. But 3 hours later we were up in to the air again so now worries there. KLIA by the way was everything I had ever heard it to be as far as architectural genius is concerned *sigh*

The seating situation was a gamble for the 14 hour flight. We had one window seat, one middle seat and then the aisle seat was for another. Of course Mr. Not So Fond of Flying wasn’t keen for the window seat. The prediction was a cute young guy or girl in the third seat, preference far being towards girl for Shrimp’s sake. Her name was Rose. She was one mopnth of 25. She was Scottish and very nice and funny to tak to.

I slept very little and watched the first half of every movie in the long list twice before settling on the 3 Friends and 2 How I Met Your Mother ep’s, which I have already memorised by heart.

Oh, I was stopped in customs for a small pair of scissors (I didn’t even know I had packed!) and Shrimp was felt up by a nice security boy. I inadvertently ripped us off on our train ticket to Paddington. We missed our first train out of Heathrow. We almost forgot customs. We met some nice Aussies on the Express. I saw a black guy with a ‘fro and yes…A COMB IN HIS HAIR!!! We got lost on our way back from a stroll in Hyde Park, which is 3 blocks from our 18th Century Hotel. I am fully keen to break in to this beautiful cemetery I found.

Tomorrow we book our tours and buy our Oyster card. Every third vehicle you see is either a double decker bus or a mid-Century taxi. Paddington is so typically London I feel like I will bump in to Hugh Grant at any moment. It is beautiful and I would be in love if I had had more than 2 hours sleep in the past 40 hours…

So now I am off to bed.
Mum and Dad-I am safe and I love you.


Author: Chevron Spots

I am in my mid twenties and fighting my battles to discover who I am and where I fit in to this zany, beautiful world. I was diagnosed with Lupus in in 2008. This takes up most of my focus, as I want to share the experience of trying to live with and rise above chronic invisible illness, so to speak. I would like to stress very much the information regarding medications, medical procedures and illnesses are discussed from my point of view, and with my understanding, colloquialisms and metaphors. I do not attempt to be legally and precisely accurate for the general population, rather I try to be emotionally and descriptively true to my experiences. I hope I can help in understanding others with chronic illness by providing one more personal recount of just how spontaneous and difficult these lives really are. One day I hope to visit every continent, climb some pretty high mountains, sleep in an ice cavern, marry a wonderfully understanding man, have children and teach more children. Mostly, I just want a simple life, you know the house with a husband and kids. Oh, and no pain.

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