This Lupus Life

I am the dancer and Lupus is my music. I want to make it look beautiful

Moving fast and sure

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Today I had a visitor. A close old friend from school. Shrimp.
He came over to fulfill a promise he’d made me a while ago. We were going for a motorbike ride. You see about a year ago Shrimp finally got his road bike license. He’d been going for it for ages but every time he went for the test he failed due to the testers being biased against him. One time it was the weather though. To be fair.
So he has his license and I’d finally worked up the courage to know I could get on a motorbike about 6 months ago.
3 months ago I asked him if I could go for a ride with him.
3 weeks ago we finally got around to organising a day.
Today it was cold. Freezing. For Perth anyway. Chance of rain around evening.
I wore my black leather jacket. The one I had sporadically bought in Fremantle two years ago when I was in a phase where I really wanted to own a moped. Too afraid to ride on one certainly, but wanting one all the same.
Shrimp offered me gloves but I declined. I doubted I would need them and they would make it harder to hold on. I held on to him, of course, not the bike. It wasn’t until I sat on the bike I realised I had no idea what I was doing.
We didn’t go fast. Or do anything silly. We didn’t go far from home. Or on to any of the major highways.
I still got a mad rush of adrenaline. Not like when you jump off a building. Not like being in an upside-down plane. But enough to make me feel happier than I have in weeks.
The ride was just what I had expected and imagined and needed. There was one somewhat negative thing I have to admit about the ride…
I should’ve worn the gloves! Brrrrr!!

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Author: Chevron Spots

I am in my mid twenties and fighting my battles to discover who I am and where I fit in to this zany, beautiful world. I was diagnosed with Lupus in in 2008. This takes up most of my focus, as I want to share the experience of trying to live with and rise above chronic invisible illness, so to speak. I would like to stress very much the information regarding medications, medical procedures and illnesses are discussed from my point of view, and with my understanding, colloquialisms and metaphors. I do not attempt to be legally and precisely accurate for the general population, rather I try to be emotionally and descriptively true to my experiences. I hope I can help in understanding others with chronic illness by providing one more personal recount of just how spontaneous and difficult these lives really are. One day I hope to visit every continent, climb some pretty high mountains, sleep in an ice cavern, marry a wonderfully understanding man, have children and teach more children. Mostly, I just want a simple life, you know the house with a husband and kids. Oh, and no pain.

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