This Lupus Life

I am the dancer and Lupus is my music. I want to make it look beautiful


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They say that when life gives you lemons you make lemonade. What if life gives you these lemons, and you make that lemonade. You taste it and it is fine. You give some to your friends and they also say its good. So you keep drinking. Halfway through the glass you start to get sick?
Whose fault is this?

What if you knew you would get sick? People with Rhuematism have bad reactions to high levels of citric acid. It makes your muscles cramp around the joints. And then you start to get stiff and achy. Moving in general becomes this great burden that you simply don’t want to deal with.

So what if I make lemonade, or even just juice up a dozen large, lovely lemons into a small jug and mix it in with my water for a few days. Even though I know what it is going to do to me?

It seems I am a masochist. I don’t know why, I must just like the pain. After a while I suppose I have just become accustomed to it and expect it as the norm.

All I want my freaking lemon juice. I wish someone would cut me a freaking break and let me freaking have my lemon juice. I don’t want to see the person next to me having their lemonade when I have to stick with tastless, nothingful water.


Author: Chevron Spots

I am in my mid twenties and fighting my battles to discover who I am and where I fit in to this zany, beautiful world. I was diagnosed with Lupus in in 2008. This takes up most of my focus, as I want to share the experience of trying to live with and rise above chronic invisible illness, so to speak. I would like to stress very much the information regarding medications, medical procedures and illnesses are discussed from my point of view, and with my understanding, colloquialisms and metaphors. I do not attempt to be legally and precisely accurate for the general population, rather I try to be emotionally and descriptively true to my experiences. I hope I can help in understanding others with chronic illness by providing one more personal recount of just how spontaneous and difficult these lives really are. One day I hope to visit every continent, climb some pretty high mountains, sleep in an ice cavern, marry a wonderfully understanding man, have children and teach more children. Mostly, I just want a simple life, you know the house with a husband and kids. Oh, and no pain.

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