This Lupus Life

I am the dancer and Lupus is my music. I want to make it look beautiful

Meet Pat


After waking up with unbearable pain throughout my whole body every morning for a month I had to go to the doctor. My boyfriend at the time had glandular fever so it seemed I had caught the bug. To this day I still think the best thing I have gained since being in the city is my doctor. When I went to her with my symptoms, she went through my past history and sent me off to be tested for everything. And I mean everything!

One thing I have learned early on in life is this: If your GP gets you into an appointment with a specialist within a day then something serious is going on. The day after my tests my doc called. I was to go see Doctor Pat at lunch. Not to worry, but he’ll need to do some tests.

Dr Pat, I found out, is a Rheumatologist. We went through my symptoms. And my history. And my tests. And we ordered some more. I say we because one of the tests was optional. I said yes, it seemed silly not to really. Going to a specialist and not knowing what for is always a bit hard. It tends to fray the nerves a bit. So when Dr Pat said  I was to come back in a week when the rest of the test results were in.

Oh, and was I able to go to Murdoch to see another specialist, a Neurologist. That appointment was first thing in the morning the next day. Dr Pat had organised that and very early on with the Neurologist I found out it was because it seemed that I had Bell’s Palsy. I knew one of my eyes was lazy but to find out that it was to that extent was a shock. All the muscles in the right side of my face had lost a lot of  their strength. Not completely but there was certainly a partial paralysis. This is treatable but not curable, unfortunately I had had it for long enough that treatment wouldn’t have been effective.



Author: Chevron Spots

I am in my mid twenties and fighting my battles to discover who I am and where I fit in to this zany, beautiful world. I was diagnosed with Lupus in in 2008. This takes up most of my focus, as I want to share the experience of trying to live with and rise above chronic invisible illness, so to speak. I would like to stress very much the information regarding medications, medical procedures and illnesses are discussed from my point of view, and with my understanding, colloquialisms and metaphors. I do not attempt to be legally and precisely accurate for the general population, rather I try to be emotionally and descriptively true to my experiences. I hope I can help in understanding others with chronic illness by providing one more personal recount of just how spontaneous and difficult these lives really are. One day I hope to visit every continent, climb some pretty high mountains, sleep in an ice cavern, marry a wonderfully understanding man, have children and teach more children. Mostly, I just want a simple life, you know the house with a husband and kids. Oh, and no pain.

4 thoughts on “Meet Pat

  1. Pingback: Being ‘Well’ Fit Despite Arthritis | This Lupus Life

  2. Pingback: Bell’s Palsy | This Lupus Life

  3. Pingback: Awards and Progress | This Lupus Life

  4. Pingback: My Systemic Lupus Erythematosus | This Lupus Life

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